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Returning Aggregate Results to Research Participants/Families: Updated Recommendations From the Children's Oncology Group.

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Pediatric blood & cancer 📖 저널 OA 42.3% 2022: 0/2 OA 2023: 2/3 OA 2025: 2/16 OA 2026: 48/101 OA 2022~2026 2026 Vol.73(2) p. e70066
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Ruccione KS, Crane S, Bocking T, Darling J, Fernandez CV, Fisher B

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In 2012, the Children's Oncology Group (COG) issued 18 recommendations for returning aggregate research results to participants.

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APA Ruccione KS, Crane S, et al. (2026). Returning Aggregate Results to Research Participants/Families: Updated Recommendations From the Children's Oncology Group.. Pediatric blood & cancer, 73(2), e70066. https://doi.org/10.1002/1545-5017.70066
MLA Ruccione KS, et al.. "Returning Aggregate Results to Research Participants/Families: Updated Recommendations From the Children's Oncology Group.." Pediatric blood & cancer, vol. 73, no. 2, 2026, pp. e70066.
PMID 41454798 ↗

Abstract

In 2012, the Children's Oncology Group (COG) issued 18 recommendations for returning aggregate research results to participants. This manuscript reviews the Return of Results (ROR) Committee's progress in implementing these recommendations. A multidisciplinary review assessed implementation status, identified challenges, and incorporated relevant literature to propose updates and future research directions. Fourteen recommendations were fully or partially implemented, three were deemed infeasible, and one is planned for future action. Successful implementation was supported by infrastructure, education, and ongoing quality improvement. This experience offers a practical model for other cooperative research groups aiming to return research results beyond clinical trials.

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