Experience of family caregivers of breast cancer-related lymphedema patients participating in lymphedema management: a phenomenological study.

[BACKGROUND] Home-based maintenance treatment is necessary for patients with breast cancer-related lymphedema even after their treatment regimen is finished. There is limited understanding regarding the involvement and experiences of family caregivers in effectively managing lymphedema. Therefore, this study aims to explore the daily experiences of family caregivers in order to enhance their home care plans for lymphedema management.

[METHODS] Employing phenomenological research methods, semi-structured interviews were conducted with 12 family caregivers responsible for the care of breast cancer-related lymphedema patients. The content of the interviews was transcribed and analyzed using Nvivo12.0 software and Colaizzi's 7-step method.

[RESULTS] A total of three themes and eight subthemes were extracted from this study: (1) a fragmented understanding of lymphedema; (2) contradictory caregiving behaviors; and (3) systemic challenges in daily care.

[CONCLUSIONS] By qualitatively exploring the caregiving experiences through interviews with these 12 family caregivers, this study offers valuable insights to medical professionals involved in patient care services. It is recommended that a family-centered empowerment model (FCEM) be employed as a basis for developing and implementing a comprehensive family management program aimed at equipping family caregivers with professional knowledge, enhancing their ability to manage lymphedema effectively, promoting patients' health recovery, and improving their overall well-being.